Nov 30 2009

It’s not all fun and games

Mr Stuff

It’s time for me to put up one of those most rare of posts, one where I open up a little.

Due to many factors I will always put a brave face onto any situation but I feel that my mask is starting to slip a little. Saturday morning was one of my worst in a while and I got up at 1.30 am, and I tried to soldier through the day but it was pointed out to me that it was a bit of a struggle, and it was. It’s really exhausting trying to keep a happy appearance when I’m feeling like crap, both physically and mentally.

I feel just like a sick kid during the summer holidays, having to look out of the window to see all my mates playing in the sun while I have to stay in on my own.

It’s getting to the point where I am so mentally exhausted that I can currently do little more than play games and watch TV. I’ve got some stuff to do to help out some people but just can’t seem to get my head to the point where I can even think about starting it, and to those people I apologise. I’m trying to get the stuff done but just can’t right now.

And so we approach Xmas, which I don’t usually like (I get quite Bah Humbug), but I do like the social aspects of it and feel that while I’ll try to take part I think my involvement will be very limited.

Anyway that’s enough of me bitching and whining about me feelings and stuff, but I do want to say special thanks to Mrs Stuff, Lisa, Eor and Buurd who have all been (and will hopefully continue to be) ace in keeping me chipper and generally keeping an eye on me.


Nov 27 2009

Day 700 is upon me

Mr Stuff

So as you can see from the counter at the top of the page I’ve hit day 700, so what to do about it? I thought about bitching and whining about it but I’ve done enough of that, instead I’m going to list some of the more interesting stats I can get from the last 700 days.

So in the last 700 days I have:

  • Eaten approximately 1400 fish fingers
  • Eaten approximately 150 kg of oven chips
  • Seen 6 different doctors
  • Seen 8 different gastroenterologists
  • Had 1 organ removed
  • Had approximately 35 hospital visits
  • Visited a doctor approximately 200 times
  • Spent approximately 60 hours in waiting rooms
  • Taken approximately 2100 anti nausea tablets
  • Taken approximately 1400 pain killers
  • Added 30,000 to my 360 gamerscore
  • Had approximately 3500 cups of coffee
  • Had my symptoms make me get up before 4am about 250 times
  • Been to the pub 7 times (yes really)

That’s about all I can think of at the moment but if I think of any more I’ll update the post.


Nov 20 2009

Games n Stuff

Mr Stuff

It’s been a while since I last updated on my increasing gamerscore and current games so here you go.

My gamerscore is now up to just over 39,000 and should break the 40,000 barrier by the end of the month due to the achievements I have to get on my current games, which is nice.

As for games I have been through a few in the last few months but have been trading like the wind and am currently down to just 3 games but they are good ones. I have Ghostbusters, written by and starring the original cast, and it is awesome as I get to play with a proton pack and blow shit up.

Next we have Call Of Duty: Modern Warfare 2 which is probably one of if not the best first person shooters about at the mo, and I love it. There was some controversy when it was released due to one level where you go to an airport with a few terrorist mates and kill a lot of innocent civilians. It’s all part of the story as you are undercover with the terrorist organisation, but it is a little unsettling to kill all the innocents, but they gave the game an update so you can skip the mission if you want to.

Lastly we have the sequel to one of my favourite games of the last few years, Assassin’s Creed. I’ve only just started playing it, it only came out this morning, but so far it is looking good.


Nov 20 2009

Another early start

Mr Stuff

I didn’t realise it had been a week since I last blogged, but to be fair not a lot has happened in the last week apart from a few more early mornings. Seems that this spate of feeling really bad is continuing.

I’ve not really had any good days for a while now and it’s starting to make me a bit grumpy and short-tempered which is not good. I keep apologising to Mrs Stuff but she keeps telling me it’s OK and I’m not that grumpy, but I think I am so I’ll keep apologising for it.

Anyway that’s about all for now


Nov 13 2009

My 1337 art & craft skillz

Mr Stuff

As well as doing lots of sudoku to keep my brain active I’ve also taken to folding crisp packets and other rectangular wrappers into triangles, so to celebrate my good news from this morning I’ve made a picture of Pepper for you all to enjoy.

Pepper Art


Nov 13 2009

Finally getting somewhere

Mr Stuff

So I had my appointment with my new gastro guy this morning and he was indeed interested. He put me through the most comprehensive exam I’ve ever had, he even asked Mrs Stuff to leave the room, and asked loads of questions, even better he actually listened to me. But he was unsure of where to go from there so he brought in another gastro guy who will be taking over my care, and it turns out that this is the top gastro man in the hospital.

So I’ve finally worked my way to the top and the guy wants me to have another test, one that I haven’t had before, and will see me again in 5 weeks. This will give him time to look through my notes and send a letter to my doc with details of his plan.

So nearly 2 years on and I can finally see some movement. Yay


Nov 10 2009

She’s sleeping where?

Mr Stuff

Pepper has to be one of the most spoilt cats I know, she has her own rocking chair and our spare room has pretty much become her bedroom, with a double bed for her in it. But given all of these places to sleep does she use them, hell no. Give her a washing basket with some clothes in it, then knock it over and there you have it. Bless.

Sleepy


Nov 10 2009

Come on Friday

Mr Stuff

It’s just gone 3am and I’m up again, not a good thing, and I really want it to be Friday so I can see the new Gastro guy. This is the one that’s interested in seeing me so will hopefully have something to say that I haven’t heard before.

I’m not getting my hopes up too much because I know there is a chance that he won’t be able to do anything but some hope is better than none I spose


Nov 2 2009

Fragile

Mr Stuff

You’d think after all this time that I’d be used to the symptoms but no, and for the last few weeks they have been going wild. I’ve been feeling really fragile, walking any distance leaves me exhausted and really nauseous and the pain keeps popping up to remind me that it’s still there. It’s really disheartening especially since it feels as bad as it did at the start.

But I’ve been taking steps to keep my brain active in the form of Sudoku. I got a really good touch Sudoku app for my phone and it really helps to keep me occupied, and keep my mind off the symptoms, as well as making sure my brain doesn’t turn to complete mush.

But I’ve also found out that my appeal against the decision to stop my ESA has been turned down so now I have to go to a tribunal at some point to try and argue my case. I’ll make sure I’m properly armed for it with letters from my doctor and the specialists.